Condition has left Katie unable to walk or talk with doctors saying that if they ever figure out what it is.
Nine-year-old Katie Renfroe has an abnormally large brain and head that has doctors so baffled that they say that the rarity of it has left them being unable to identify what causes the condition.
The little girl cannot walk or talk and suffers from seizures, needing brain surgery at just nine months old.
Initially, Katie was diagnosed with growth development disorder megalencephaly which causes overgrowth of the brain, but medical experts later had to change their minds.
The girl’s mother Angie, from Florida has now been told that the condition is so rare that it could be names after Katie.
Speaking to The Daily Mail she said that Katie is very rare and while she has not been diagnosed with anything and the doctors are still trying to find out what she has.
According to Angie, she was about six months pregnant when the doctors told her that her child was going to have megalencephaly, however, doctors now claim that they do not know what is wrong with her and say that if they discover what it is, they will name it after the nine-year-old.
When Katie was first born, the family travelled to Hollywood, Florida, to visit Doctor Roman Yusupov, a specialist in paediatric genetics and craniofacial disorders.
But unfortunately, he was unable to diagnose the girl and has continued to monitor her progress since then.
Katie’s condition means that she has to be fed via tube and has already endured numerous surgeries.
Katie attends a school for children with disabilities – but she is able to work on the computers and interacts with the class with the help of her favourite teacher.